London Vision coordinates a Charles Bonnet Syndrome support group with CBS charity Esme's Umbrella, over telephone and Zoom. It provides a space for discussion and peer support for those with the condition.
Charles Bonnet Syndrome is a syndrome that affects people with deteriorating sight, and it can cause visions and hallucinations. These visions can be benign, perhaps depicting simple patterns, or even flowers, but sometimes they can appear more sinister. People suffering with CBS have reported seeing people dressed in Victorian outfits, bedraggled children, or worse. Some of the images can be terrifying, others mildly annoying. CBS can affect people who have lost some, or all of their eyesight.
Want to know more about Charles Bonnet Syndrome? Read this blog about living with CBS, or this article about the formation of the support group.