If you live with sight loss and have seen something you know isn’t really there, then you are not alone. Many people who have low vision report seeing people dressed in Victorian outfits, strange faces, and shimmering patterns. Some of the images can be terrifying, others mildly annoying. The condition is known as Charles Bonnet Syndrome (CBS) and was identified about 300 years ago. 

Esme’s Umbrella is a campaigning organisation that raises awareness of CBS and supports the needs of people with CBS. London Vision is teaming up with Esme’s Umbrella to establish virtual peer support groups for people with CBS. We are looking to launch the groups with a first meeting wherein the condition and its impact will be explained in detail. Strategies for coping with CBS will also be explored.

Most importantly, the group will be opportunity for people with CBS to share their experiences with others who experience similar hallucinations. Friends and family are also more than welcome to join these meetings, which will be friendly and informative. 

The meetings will take place on Zoom, but if you need help or guidance accessing Zoom then please get in touch and we can explain how it works. You can also read this article for more advice on using the Zoom platform. 

We would love to hear from you if you are interested in joining the group or just want to tell us your experience of living with CBS. Please get in touch on [email protected] or give us a call on 020 3761 3651.

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